Flushing away the poo taboo, together!
What is it that stops us from talking about our digestive health, or poo, as openly as we’d talk about having a cold, a headache or back pain? After all, our poo is an indication...
7th March 2024
1st September 2023
September is achalasia awareness month. Achalasia is a condition that affects the nerves and muscles of the oesophagus (food pipe), mainly at the lower end where it meets the stomach. Achalasia interrupts food and fluid travelling down the oesophagus and entering the stomach.
The most common symptom is difficulty swallowing (dysphagia) that occurs with both food and liquids.
Other symptoms can include:
These symptoms may be present for months or even years before people seek help. As well, because of the non-specific nature of symptoms and the relative rarity of achalasia this means there can be a delay in diagnosis.
Achalasia can have an impact on people’s general well-being from the symptoms. People can struggle to keep weight on and it can lead to poor nutrition. Meaning if you are unable to maintain a healthy weight and become malnourished, other feeding methods may be needed.
Another way achalasia can affect you is because of the complications from the actual condition. These are both very rare and include:
Unfortunately, there is no cure for achalasia. However, some patients will achieve reasonable symptom control with treatment although a small number of patients may have ongoing symptoms despite treatment. Continue reading to discover stem cell research previously funded by Guts UK.
Dannii was 18 years old when she first noticed symptoms, after swallowing rice. She noticed it was stuck in her throat and also experienced reflux and pains in her chest. Her symptoms showed gradually over a couple of months but she first ignored them. This was because she had won a scholarship to the FA National England player development centre and didn’t want to be deemed “unfit” for selection.
However, her symptoms continued to the point where it took her over an hour to finish a meal and she experienced other symptoms such as weight loss and struggling to stay hydrated. After speaking to her doctor, it took a full year for Dannii to get diagnosed with achalasia.
“I struggled in the early days to describe my symptoms. I remember the turning point being when I described it as a ‘functional problem.’ My food wasn’t going into my stomach. He (my consultant) decided to send me for a barium swallow test, where I was finally diagnosed with achalasia.” ” –Dannii.
Guts UK's research changes lives. Your donations make it possible. Help the UK get to grips with guts by donating today.
Guts UK proudly funded Dr Conor McCann’s three-year research fellowship into achalasia and gastroparesis. Dr McCann investigated whether those damaged nerve cells can be replaced and by doing this, restore appropriate muscle contraction in the gullet or the stomach. If he is successful, we might be able to treat achalasia and diabetic gastroparesis in the future by injecting new nerve cells into the relevant part of the gut, to restore its function.
We recently caught up with Dr McCann to hear about the possible next steps for this research project:
“This project has provided some promising initial findings that stem cell-based treatments could be a future treatment for conditions like achalasia and gastroparesis. I’m incredibly grateful to Guts UK for their funding and support. The fellowship I was awarded by Guts UK not only gave me a platform to begin this important research, but it allowed me to really drive it forward. From this, I was able to apply for more grants to help us develop the lab further and acquire skilled personnel. Guts UK really helped to lift this research off the ground.”
What is it that stops us from talking about our digestive health, or poo, as openly as we’d talk about having a cold, a headache or back pain? After all, our poo is an indication...
7th March 2024
We’re delighted to take our free ‘Science of Digestion’ event to Hull next month (Tuesday 14th May 2024!) This is your opportunity to learn all about the hidden world inside your guts and the latest...
22nd April 2024
Download printable version (337.3KB pdf) OVERVIEW You might have noticed supply issues with pancreatic enzyme replacement therapy (PERT), sometimes also called pancreatin. This situation has progressed. It has now caused some people who need PERT...
16th April 2024
By submitting this form, you are consenting to Guts UK contacting you by email as detailed above. To make any changes to your preferences you can email us on info@gutscharity.org.uk or by calling us on 020 7486 0341. Your details are safe with us. Please read our Privacy Policy for more details.