EoE (Eosinophilic Oesophagitis) – Take part in our crucial survey

17th July 2020

How has EoE and its treatments affected your life? Adult patients and their caregivers, share your experience:

Patient and carer experiences with medicines used to treat Eosinophilic Oesophagitis (EoE) in adults.

The medicine budesonide is now available as Jorveza, a tablet that dissolves on the tongue, this medication has been approved by the European Medical Agency (EMA) and is currently being evaluated for use as an NHS treatment for adults with Eosinophilic Oesophagitis (EoE).

As part of this evaluation process, the charities Guts UK and EOS Network have been asked to submit a report into how Eosinophilic Oesophagitis (EoE) affects patients and their families/caregivers quality of life. We would like to include your experiences on the advantages and disadvantages of current treatments to give the committee a good understanding.

If you are an adult Eosinophilic Oesophagitis (EoE) patient, or caregiver/family member of an adult with Eosinophilic Oesophagitis (EoE), please complete the following survey to help us with our report.

The deadline for completion of this survey is 22nd July 2020.

> Click here to take part in this important survey

Should you feel you need support after completing the survey, or more generally to help you with living with your Eosinophilic Oesophagitis (EOE), please consider registering with EOS Network and join their community for support, guidance and up-to-date information.

HOW ELSE CAN I HELP?

  • Support us: Our information team are here to help those with digestive symptoms and conditions. We hear from our community everyday. Many are confused about their symptoms, feeling lost, frustrated and struggling to receive a diagnosis. We are passionate about providing expert, evidence-based information to patients. Together we can reach and help more people. Support our work by donating today.
  • Share our survey: Scroll to the bottom of this article to share this survey far and wide on Facebook, Twitter, Linked-In or via email. You never know who you might reach simply by sharing.
  • Share your story: The team at Guts UK learn from every single person we talk to. Share your story and experiences of Eosinophilic Diseases with us today – help us help others.

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