Become a member of our Experts By Experience Panel

As an EBE, you will:

• Share your lived experience of a digestive condition to inform projects and services as they develop, across all areas of the charity.
• Review and share your opinion on applications for our research grants and awards (as part of a wider group including medical specialists).
• Take part in meetings, focus, groups, events (and other activities) to represent and share the voice of people affected by digestive conditions. 
• Comment on charity plans, such as our strategy, policies, or proposals to ensure they are relevant and impactful.

As a minimum, our EBEs meet on a monthly basis for one hour. There will often be some preparation and reading required ahead of this.  

All of our EBEs perform their role remotely, with meetings held virtually. 

• Direct or indirect personal experience of a digestive condition* – whether that is having a condition yourself, supporting or caring for someone with a condition, or having a loved one with a condition. 

• Willing to be bold and brave and openly share your personal experience of living with, or supporting someone with, a digestive health condition.

• Prepared and available to devote the necessary time and effort to the role.

• Strong communication skills, comfortable sharing your viewpoint in a group setting and explaining your thinking.

*This page will be kept up to date with the conditions we are looking for at any point in time and we can only accept applications for the specific conditions we have listed. We will not review or retain applications that are not aligned to the conditions listed at the point of application. 

Complete the application form by the date provided in the role advert (or as soon as possible if the role is being advertised on a rolling basis).

After the role has closed to applications, we will review the applications received (or as soon as possible if the role is being advertised on a rolling basis).

If your application is successful in moving to the next stage, we will invite you to a Panel Interview.

• This is a voluntary, unpaid position and does not constitute an employment relationship. Volunteers are not entitled to employee benefits, and participation in this role does not imply any offer of future employment. 

• This volunteer role description is intended to provide a general overview of the responsibilities and expectations associated with this position. It is not an exhaustive list of all duties, tasks, or qualifications. 

• Volunteers may be required to undergo background checks or screening processes, depending on the nature of the role. 

• By applying for this position, you acknowledge and accept that this is a volunteer opportunity and agree to adhere to the organisation’s policies and procedures.