The future: diverticular disease research
Help us shape the future of diverticular disease research in the UK and Republic of Ireland.
In 2023, Guts UK launched a new PSP into diverticular disease and diverticular-related gut conditions.
If you or a loved one has diverticular disease or a related diverticular gut condition, you can have your say and help us to shape the future of research!
The first survey for the Diverticular Disease Priority Setting Partnership (PSP) is now closed. We’ll be sharing more updates here soon. In the meantime, you can scroll to the bottom of this page and leave your name and email address to receive updates about this PSP.
1 in 3 people will be affected during their lifetime. And this number is increasing. Yet research priorities haven’t been decided…until now. It’s time your voice was heard!
For double the impact, Guts UK has joined forces with Bowel Research UK, who aim to end bowel cancer and bowel disease.
We have previously completed Priority Setting Partnerships (PSP) into pancreatitis and Irritable Bowel Syndrome (IBS). These projects helped decide the top 10 research priorities for the conditions.
Below, you can learn more about what a PSP is and why we feel it is so crucial to fund a PSP into diverticulosis, diverticular disease and diverticulitis, diverticula and complicated diverticular.
What is a PSP?
The James Lind Alliance (JLA) helps facilitate PSPs for a wide range of diseases. The purpose of a PSP is to identify and prioritise the unanswered questions for certain medical conditions, or areas of health.
The process of a PSP brings together patients, carers, doctors, nurses, scientists, researchers, dietitians and other health professionals, all with an equal voice. Together, they decide the top ten research priorities for their condition.
Why is Guts UK funding a PSP for diverticular disease?
Our guts have been underfunded and undervalued for decades. A PSP has never before been completed into diverticular disease or diverticulitis. It’s time we change that. Guts UK is proud to initiate this huge step forward for this misunderstood condition.
- What is diverticular disease?
‘Diverticulosis’ is when pouches are formed along the bowel wall. Most of the time, these pouches are completely harmless. Sometimes, they can cause symptoms for people, which is referred to as ‘diverticular disease’. When these pouches become infected or inflamed, they are referred to as‘diverticulitis’.
- How many people have diverticular disease?
This affects 1 in 3 to 1 in 2 people in the UK in their lifetime.
How can this PSP change future diverticular disease research in the UK?
Diverticular disease is a misunderstood and underfunded condition.
We hope this PSP will ignite a change in attitudes, and lead to increased research funding for diverticular disease in the UK.
Every single person who wants to have their say in the future of diverticular disease research in the UK will get their chance to do so.
Helen West, Guts UK’s Patient/Public Involvement & Engagement Officer, will be sending updates about the PSP, including timings and when you can expect to be involved, by email. For updates and your opportunity to have your say, please sign up below.
