Flushing away the poo taboo, together!
What is it that stops us from talking about our digestive health, or poo, as openly as we’d talk about having a cold, a headache or back pain? After all, our poo is an indication...
7th March 2024
15th February 2021
Have you, or someone you care for, been given a medication called Lonsurf for treatment of advanced stomach cancer and cancer of the oesophageal (gullet)/stomach junction? Or have you had at least two whole body treatments for advanced cancer and are now being given best supportive care?
Please consider completing this survey, that will help inform future medications.
Trifluridine–tipiracil (Lonsurf) is a cancer medicine (chemotherapy) for the treatment of adult patients with stomach cancer and cancer of the junction between the stomach and gullet. This medication is proposed to be used for people who have been previously treated with at least two whole body treatments for advanced cancer.
This medicine (chemotherapy) is proposed for treatment when most people would only be given best supportive care for their cancer as a third treatment. It is very unusual to receive more than two chemotherapy treatments because of lack of evidence of benefit to patients.
The Scottish Medicines Consortium (SMC) is committed to working in partnership with patient groups to capture patient and carer experiences and use these to inform decision-making with regards to approval of medicines for use in Scotland. They are requesting the opinion of patients and carers of patients with these cancers about the use of this treatment. If you are living in the UK and have tried this treatment; or are living with best supportive care for cancer; or are a carer for someone with these advanced cancers, we would like to hear your views on living with this diagnosis and what the possible benefits and drawbacks are of this treatment.
The deadline for completing this survey is 22nd February 2021.
Click here to complete the survey. You will play your part in informing future medications.What is it that stops us from talking about our digestive health, or poo, as openly as we’d talk about having a cold, a headache or back pain? After all, our poo is an indication...
7th March 2024
We’re delighted to take our free ‘Science of Digestion’ event to Hull next month (Tuesday 14th May 2024!) This is your opportunity to learn all about the hidden world inside your guts and the latest...
22nd April 2024
Download printable version (337.3KB pdf) OVERVIEW You might have noticed supply issues with pancreatic enzyme replacement therapy (PERT), sometimes also called pancreatin. This situation has progressed. It has now caused some people who need PERT...
16th April 2024
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