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Home Awareness campaigns and public education Kranky Panky Pancreatitis Awareness Campaign Share a pancreatitis story

Kranky Panky Pancreatitis Awareness Campaign

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Home Awareness campaigns and public education Kranky Panky Pancreatitis Awareness Campaign Share a pancreatitis story

Kranky Panky Pancreatitis Awareness Campaign

Awareness campaigns and public education
Kranky Panky Pancreatitis Awareness Campaign

Share a pancreatitis story

Sharing your or someone else's pancreatitis story is a powerful way of raising vital awareness about the condition and the impact it has.

Our pancreatitis awareness campaign, Kranky Panky, brings people together, from those sharing their own experiences of living with pancreatitis to families sharing stories on behalf of and in memory of their loved ones.

Every story shared has the power to change how people understand digestive symptoms and conditions. We want everyone to feel seen, heard and included. That’s why we’re especially keen to hear from people from underrepresented communities. By sharing your pancreatitis story, you’ll help raise vital awareness and help us build a community that truly reflects us all.

Use the form below to submit your interest in sharing your pancreatitis story.

Please note that submission of this form does not guarantee that the story will be shared. As a small but mighty team, we are unable to share every story. If an opportunity arises, we will be in touch. Thank you.

Your information

Your name(Required)

First name Last name

Your age(Required)

Who are you?(Required)

Please let us know who you are filling in this form for.

I am filling in this form for myself (adult aged 18 or over)

I am filling in this form on behalf of a child who is under the age of 18 and I am their parent or legal guardian

I am filling in this form on behalf of someone else (aged 18 or over)

I am filling in this form in memory of someone who has passed away

Your relationship to whose story you are sharing (if applicable)

About you/the person whose pancreatitis story you are sharing

Their name

If you are sharing a story on behalf of someone else, please let us know their name. Ignore if the story is about you.

First name Last name

Their age (if this story is about someone else)

If in memory, please let us know at what age they passed away.

In a few sentences, tell us a little about yourself/the person whose story you are sharing (who you/they live with, hobbies, your/their job if you/they work)(Required)

Example: "I live with my two dogs and I don't work. I love to read."

Your/their gender

We ask this to ensure that the stories we share are representative of everyone impacted by digestive conditions and symptoms. Please select from the dropdown below.

If you prefer to describe your/their gender in your own words, please do so in the text box below

Your/their pronouns

This helps us to refer to you/them correctly in any written articles, social media posts or when we get in touch with you. Please select from the dropdown below

If you prefer to describe your/their pronouns in your own words, please do so in the text box below

Your/their ethnicity(Required)

We want to ensure the stories we share reflect the true diversity of the UK. This helps us reach underrepresented communities and work towards a future where no one faces a digestive condition or symptoms alone.

If you prefer to describe your/their ethnicity in your own words, please do so in the text box below

Your/their pancreatitis story

Which type of pancreatitis have you/they been affected by?(Required)

Acute pancreatitis

Chronic pancreatitis

Both

Which symptoms were experienced?(Required)

Select all that apply.

Abdominal pain (usually just below the ribs)

Pain that radiates to the back

Feeling sick (nausea)

Being sick (vomiting)

A fever and a high heart rate

Diarrhoea

Weight loss

Fatigue

When did your/their symptoms start and what did you/they do in response?(Required)

What led to the diagnosis? (e.g. medical tests)(Required)

What year did you/they receive a diagnosis?(Required)

Had you/they heard of pancreatitis before being diagnosed?(Required)

How has pancreatitis impacted your/their life?(Required)

This can mean both physically and emotionally and whatever else you'd like to share.

Is there anything you/they would have found helpful to know before being diagnosed?(Required)

Why would you like to share your/their story with Guts UK charity?(Required)

Please tell us anything else that you'd like to share in your story:

Your/their involvement with Guts UK

Have you/they had any previous involvement with Guts UK Charity?(Required)

Whether you/they have used our information leaflets or fundraised for us, we'd love to know.

Yes

If yes, tell us more about your involvement with us (e.g. I've fundraised for Guts UK or I've taken part in #GUTSelfie)

Why are you supporting Guts UK charity today?(Required)

Photos

Please upload up to three clear photos of yourself and/or the person whose story you are sharing(Required)

We will use these photos alongside your story. Where applicable, you must obtain permission.

Drop files here or

Accepted file types: jpg, gif, png, pdf, Max. file size: 50 MB, Max. files: 3.

Maximum file size - 50 mega bytes.

Your contact information

Your email address(Required)

Your contact number(Required)

Your Instagram/TikTok handle (ours is @gutscharityuk)

Please leave your Instagram/TikTok handle if you are happy for us to tag your account when we share their story on social media. Please note, we can only do this if your profile is public.

Address(Required)

As a UK charity, we can only share stories from people based in the UK.

City/Town Region

Permissions

Where possible, you must obtain their permission.

Permissions - Media(Required)

By ticking this box, I acknowledge that my/their story may be shared on Guts UK's website, social media and other channels. (Please note, we will always contact you first before sharing.)

I am happy for Guts UK to share my story in the ways listed above

Permissions - Research and Public and Patient Involvement and Engagement (PPIE) requests(Required)

Should an opportunity arise for being involved in research or PPIE requests, I am happy for Guts UK to contact me with the details I have provided:

Yes, I'd like to be contacted

No, I don't want to be contacted

CAPTCHA

How we’ll store and use your information

Your information will be stored safely and securely by Guts UK Charity, in line with our Privacy Policy. The information you provide in this specific form will only be used to share your story or the person’s story you have shared, and raise awareness of digestive conditions and our work at Guts UK.

We’ll be in touch if we plan to use your story. In the meantime, you can change your mind at any time. Please get in touch with us at comms@gutscharity.org.uk or call 020 7486 0341.

did you know your guts are 25ft long?! sign up for more fascinating facts, the latest research developments and how you can support further, including fundraising activities and more:

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Digestive diseases are conditions that affect the gut, liver and pancreas. Collectively, they are a factor in 1 in 8 deaths in the UK. Guts UK funds life-changing medical research into the whole digestive system.

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