Sharan’s Crohn’s disease story
In 2001, Sharan woke up one day with diarrhoea and abdominal pain. She thought it was the heavy, spicy Indian food she had at her cousin’s wedding, but her symptoms didn’t stop. By 2002, she...
Do you suffer with Chronic Pain?
Guts UK have been approached by NICE (the UK body aiming to improve outcomes for those using the NHS and public/social services) to gather comments from our community on chronic pain. Guts UK will represent abdominal pain.
NICE have released their draft guidelines for chronic pain. These guidelines will be used in the future as recommendations/guidance for healthcare professionals across the country, and are hugely influential.
For those with chronic abdominal pain (pain in the abdomen that is present for more than 3 months), this is a brilliant opportunity to influence these important guidelines and have your say.
“The patient voice is so important, and this opportunity allows patients to shape future national guidelines. Patients are experts by experience. When patients come together with specialists – that’s the sweet spot”– Julie Harrington, Guts UK CEO
After reading the draft guidance, Team Guts UK feel that abdominal pain and digestive diseases are largely underrepresented. We feel that further digestive conditions need to be listed, especially considering how debilitating chronic abdominal pain can be for those with digestive diseases.
But we want to know your thoughts.
Please email your thoughts (however short or long) to info@gutscharity.org.uk. Please use the subject ‘NICE – Chronic Pain’ and make sure you email before the 7th September 2020.
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1st to 7th December: Crohn’s and Colitis Awareness Week
Crohn’s and Colitis Awareness Week takes place in December each year. Crohn’s disease, ulcerative colitis and microscopic colitis are the three main conditions classed as an Inflammatory Bowel Disease (IBD).
