Flushing away the poo taboo, together!
What is it that stops us from talking about our digestive health, or poo, as openly as we’d talk about having a cold, a headache or back pain? After all, our poo is an indication...
7th March 2024
2nd July 2021
Our Priority Setting Partnership (PSP) for Pancreatitis has now been completed. This PSP sets out the top 10 research priorities within Pancreatitis in the UK and Republic of Ireland and can be viewed here.
The James Lind Alliance (JLA) helps set up Priority Setting Partnerships (PSPs) for a wide range of diseases. The purpose of this PSP is to identify and prioritise the unanswered questions in the area of acute and chronic pancreatitis. We aim to have a final output of the top ten research areas needed in pancreatitis put in priority order. The PSP process brings together patients, their carers, doctors, nurses, scientists, researchers, dietitians and other health professionals all with an equal voice.
Guts UK charity along with the British Society of Gastroenterology (BSG) and the Pancreatic Society of Great Britain and Ireland (PSGBI) are all co-funding and collaborating on this PSP.
Each PSP has a Steering Group of twelve people. Six are medical professionals in the field of pancreatitis the other six are the ‘lay’ members or experts by experience, as we like to call them. These ‘lay’ members have either been personally affected by pancreatitis or cared for a loved one with pancreatitis. These are the people we now want to recruit. If you have or have had pancreatitis, or care for someone with pancreatitis, this is your chance to shape the future of pancreatitis research. This has never been done for pancreatitis before and will be a huge step forward for families affected by this misunderstood disease.
This Steering Group meets monthly (at a time yet to be co-ordinated) and leads on the PSP activities, with a vital role of reaching out to inform other people within the wider pancreatitis community, enabling everyone to make their contribution. We want to involve and engage as many voices as possible in the process to represent all people affected by pancreatitis.
It is expected that the process will take 12 – 18 months in total so anyone interested in being a lay member of the steering group must be able to make this time commitment.
What we ask of Steering Group Members. You will need to commit to:
We will commit to:
Your contribution will be a vital part of the future research programme so vitally needed for pancreatitis in the UK
Please write a brief summary (no more than approximately one page) providing the following information. The easiest way to do this is by filling in the form below, but you can also call Helen West on 020 7486 0341, email Helen on hwest@gutscharity.org.uk or post to Helen West, Guts UK, 3 St Andrews Place, London, NW1 4LB.
Applications are now closed. But don’t worry, everybody will get their chance to have their input about what they’d like to see in the future of pancreatitis research.
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