Information Specialist for the Priority Setting Partnership (PSP): Pancreatitis
£450 / day plus VAT
Hours of work
20-30 days throughout the PSP's length
30 Jul 2021
Guts UK is the only UK charity funding research into the digestive system from top to tail. Our mission at Guts UK is to provide expert, evidenced based information, raise public awareness and fund life-changing and life-saving research. Research into our guts is woefully underfunded and has been for decades.
With new knowledge, we will end the pain and suffering for the millions affected by digestive diseases. Guts UK’s research leads to earlier diagnoses, kinder treatments and ultimately, a cure.
We’re recruiting an information specialist to help with our upcoming pancreatitis PSP:
Guts UK Charity are setting up a new PSP (Priority Setting Partnership) on pancreatitis. The project will involve looking into both acute and chronic pancreatitis in children, adolescents and adults of all ages. The PSP provides an excellent opportunity to identify key unmet research priorities in pancreatitis including a focus on aspects of diagnosis, treatment and patient factors. Pancreatitis is an under-resourced and under-researched area of gut health. Guts UK funds the only research fellowship into pancreatitis in the UK.
The role of information specialist:
The Information Specialist role is key to the success of the PSP process, turning raw survey submissions into researchable questions and then verifying that those questions are true uncertainties, thus ensuring that the work of the PSP is credible and up to date.
The tasks will involve:
- Cleaning the dataset of survey responses generated from the initial PSP survey to gather uncertainties.
- Categorising the survey responses, then creating clear, formatted indicative (or summary questions – or uncertainties which capture the meaning of the original submissions) and presenting these to the Steering Group for review and agreement.
- Checking existing systematic reviews and guidelines or other evidence, to an agreed search strategy, to identify which questions have already been answered and to find any other research recommendations.
- Checking for relevant ongoing studies
- Preparing a long list of indicative questions or uncertainties for interim prioritisation, ensuring that they are understandable for the patients, carers and clinicians who will be involved in this step and in the priority setting workshop.
- Managing a record of all PSP survey data, traceable back to the original survey submissions.
- Supplying the PSP’s working spreadsheet of indicative questions or uncertainties and the prioritised list of indicative questions or uncertainties from the priority setting workshop to the JLA, for publication on the JLA Website.
- Providing regular updates of progress to the Steering Group, including enabling members to critique and have input to the analysis and development of the indicative questions.
- Working within overall timescales agreed.
The activity will require the following:
- Database management experience
- Critical appraisal skills: comfortable with managing ad categorising large amounts of qualitative data, for example responses to open-ended survey questions.
- Experience of medical terminology
- Attention to detail – methodical and organised.
- Ability to work to deadlines.
- Ability to communicate complex information to patients, carers and clinicians, when working with the Steering Group and when formulating and agreeing indicative questions.
- Familiarity with the JLA process would be helpful, but not essential.
- Content knowledge on pancreatitis is helpful but not essential.
We are now actively recruiting for this post to have someone on board for the PSP’s first Steering Group meeting scheduled for mid-September 2021.
Estimated number of days work for the life of the PSP is approximately 20–30 days, however this may vary due to the scope of the PSP, number of survey responses, and the number of indicative questions to check against the evidence.
Payment: £450/ day plus VAT
How to apply:
Interested applicants should contact Helen West, Guts UK’s PPIE Officer with a CV and a cover letter by email to firstname.lastname@example.org
Guts UK’s vision is of a world where digestive disorders are better understood, better treated and everyone who lives with one gets the support they need.