Flushing away the poo taboo, together!
What is it that stops us from talking about our digestive health, or poo, as openly as we’d talk about having a cold, a headache or back pain? After all, our poo is an indication...
7th March 2024
27th July 2021
Our Priority Setting Partnership (PSP) for IBS has now been completed. This PSP sets out the top 10 research priorities within IBS in the UK and Republic of Ireland and can be viewed here.
The James Lind Alliance (JLA) helps set up Priority Setting Partnerships (PSPs) for a wide range of diseases. The purpose of this PSP is to identify and prioritise the unanswered questions in the area of IBS. We aim to have a final output of the top ten research areas needed in IBS put in priority order. The PSP process brings together patients, their carers, doctors, nurses, scientists, researchers, dietitians and other health professionals all with an equal voice.
Guts UK charity and the British Society of Gastroenterology (BSG) are co-funding this PSP.
Each PSP has a Steering Group of up to 16 people. Up to 8 are medical professionals in the field of IBS and the others are the ‘lay’ members or experts by experience, as we like to call them. These ‘lay’ members have either been personally affected by IBS or cared for/have a loved one with IBS. These are the people we now want to recruit. This is your chance to shape the future of IBS research. This has never been done for IBS before and will be a huge step forward for families affected by this misunderstood and underfunded disease.
This Steering Group meets monthly (at a time yet to be co-ordinated) and leads on the PSP activities, with a vital role of reaching out to inform other people within the wider IBS community, enabling everyone to make their contribution. We want to involve and engage as many voices as possible in the process to represent all people affected by IBS.
It is expected that the process will take 12 – 18 months in total so anyone interested in being a lay member of the steering group must be able to make this time commitment.
What we ask of Steering Group Members. You will need to commit to:
We will commit to:
Your contribution will be a vital part of the future research programme so vitally needed for IBS in the UK.
Please write a brief summary (no more than approximately one page) providing the following information. The easiest way to do this is by filling in the form below, but you can also call Helen West on 020 7486 0341, email Helen on hwest@gutscharity.org.uk or post to Helen West, Guts UK, 3 St Andrews Place, London, NW1 4LB.
Applications for the steering group are now closed, but everybody will have their chance to give your valuable input. Sign up to updates here.
What is it that stops us from talking about our digestive health, or poo, as openly as we’d talk about having a cold, a headache or back pain? After all, our poo is an indication...
7th March 2024
We’re delighted to take our free ‘Science of Digestion’ event to Hull next month (Tuesday 14th May 2024!) This is your opportunity to learn all about the hidden world inside your guts and the latest...
22nd April 2024
Download printable version (337.3KB pdf) OVERVIEW You might have noticed supply issues with pancreatic enzyme replacement therapy (PERT), sometimes also called pancreatin. This situation has progressed. It has now caused some people who need PERT...
16th April 2024
By submitting this form, you are consenting to Guts UK contacting you by email as detailed above. To make any changes to your preferences you can email us on info@gutscharity.org.uk or by calling us on 020 7486 0341. Your details are safe with us. Please read our Privacy Policy for more details.