Get involved in IBD research

27th September 2018

Guts UK support important projects to help improve the care of patients with IBD. One of this studies is a project being undertaken by researchers at St Mark’s Hospital, London.

The team at St Mark’s, led by Dr Misha Kabir, are looking for patients to recruit to their interview and questionnaire study to help develop a decision aid for IBD patients diagnosed with dysplasia in the future. The study includes patients with Crohn’s disease and with ulcerative colitis. Guts UK is funding the part of the study focusing on ulcerative colitis. Please see below for more details.

During bowel monitoring with colonoscopy, we look for a change in the bowel wall lining called ‘dysplasia’. We would like to learn more about whether patients with Inflammatory Bowel Disease know about this condition or need to be given more information. We also want to understand more about your preferences and opinions when it comes to how we should be treating it.

You are eligible to take part in this study if you are:

18 years old or older
Have had Inflammatory Bowel Disease of your large bowel, for more than 8 years.
Your large bowel is being monitored with a colonoscopy every 1-5 years
You have heard of ‘dysplasia’ (changes) in the bowel lining or would like to know more?

If you take part, we will ask you to complete a questionnaire. You can also consider taking part in an interview.

By taking part in this research you could help IBD specialist doctors and nurses communicate more effectively with patients about their care in the future. To thank you for your time and effort, you will be compensated for taking part in an interview and if you complete a questionnaire, you will be entered into a prize draw for £100 retail vouchers.

Please click on this link to access the Patient Information Sheet and to complete the questionnaire: https://goo.gl/forms/36eMxuKpHVo9wcUk1

If you are interested in participating but want to know more first, please contact the researcher who is leading the study, Dr. Misha Kabir, via email: misha.kabir1@nhs.net